my own WWW – Wanderings With Wayne
11th Mar 2016
Time for a rant or at least moan, well probably several moans actually.
I cannot remember if I have discussed in the previous blogs about the dementia research projects I have been contacted about as a volunteer and I cannot be bothered today to go back and check previous blogs so I will push on regardless. Anyway about 4 weeks ago I was contacted regarding a 2 year study and happily agreed to taking on the commitment. It quickly became apparent that they also wanted me to commit a.n.other to the 2 years and as I do not have/need a carer at this moment only friends would qualify. I emailed the doctor concerned to ask if it was ok to bring a friend to the appointment we had scheduled. 3 weeks later on the morning of the appointment, which I had not attended having heard nothing, he rang me to say it should be ok, he would ring same time next week (yesterday) to confirm and book new appointment. Yesterday no email no call. Today still nothing. Either he needs coping strategy lessons from a dementia sufferer or at least needed to get some appreciation of what it is like living inside this head before he tries to mess with it any more.
The other project I am involved with is going great except that each appointment takes longer than it should as I cannot stop talking. Some of the tests are unbelievably hard and frustrating but so long as it helps someone somewhere down the line it is worthwhile.
My other frustration of this odd and difficult week is that I am having a another odd day but this time it is just that I am confused ( nothing new there then). The only problem with that is I cannot work out what I am confused about or with so it has become maddeningly frustrating as I cannot fix it.
Beyond that I have a problem, well not really a problem just something I feel I MUST sort out, with my whiteboard. Up until fairly recently the magnetic whiteboard had been enough for my current papers and memory notes but as things have got worse I now have a cork notice board as well. This has freed space on the whiteboard which I decided to use more efficiently by dividing it into days, an area for week, area for month and another for general written notes. OK so far.
I wrote everything across onto paper, rubbed the board clear then drew lines on it with a permanent marker. Permanent?????? Lasted about 5 minutes and the lines disintegrated! Ribbon will be no good as I need to keep wiping the board and do not want the lines moving. Insulation tape is too wide and there would not be enough board left. I hit the shops, mostly stationary stores and explained the situation. I thought maybe I was having a garbled speech day rather than a confused day as they looked at me like I was some mad alien. Even if I am, surely my money is ok and I am still a customer. Anyway, I got nowhere.
Yes I am having an off day today but this still seems quite straight forward to me, I just cannot see the answer. Help please anyone!!!! I just want to understand why my brain will all of a sudden collapse and not make the most simple connections. Need an answer – look on the internet – obvious, but was not obvious in my head at that moment, despite the fact that I was ON THE INTERNET at that very moment typing up a post asking for help. No rhyme nor reason to this dementia lark.
catch ya soon