my own WWW – Wanderings With Wayne
16th March 2016
It only takes a moment to…….
After a couple of quiet uneventful days that were neither good nor bad, so far as I could tell, today seemed to be a good and positive one. I enjoyed a good leg stretch and conversations on my morning walking group then followed that with a very positive questionnaire and test session with my dementia research lady. Today’s brain age test scores on the laptop program were nowhere near last weeks extreme highs but were still ok and pleasing.
Having not really looked closely at Talking Point for 2 days I decided to catch up and maybe do some posts while I felt good and had something to offer. One post about communication issues from a fellow early onset sufferer caught my eye and reminded me of a ‘sticky’ post I had seen recently about the chat room being open for discussion with an expert on communication issues. Great I think, just what I need and could be of use to the other poster. Try as I might it could not be found. Finally having to admit defeat I messaged the TP team to ask about it. B A N G !!!! The good day changed in a moment. The chat room was yesterday. I had missed it. My memory of having seen it was fine but my coping strategy of writing it on my whiteboard, my pad, my phone, my laptop at that time had fallen down. I have noticed over the last couple of weeks that my carefully developed strategies built over the last 5 years are beginning to creak and breakdown. So, not only have I missed the communications chat I now quickly need a chat room about new coping strategies….. please!!!
Feeling that I had been firmly put back in my place by this disease, I went back to wandering the posts but somehow this little mishap has smashed my confidence again and I am having trouble persuading myself to post in the carers threads again. There are/were posts about visual issues and seeing (ha ha) as I have been experiencing visual troubles for the last 3 weeks now, it seemed that I could have something to say about it from the sufferer point of view. But, I cannot get myself to the point where I am able to type it in and actually post it. Stupid I know but this is where I live now.
Maybe I’ll be back on track tomorrow, maybe
catch ya soon